Chronic illness : from experience to policy /
edited by S. Kay Toombs, David Barnard, and Ronald A. Carson ; with contributions by S. Kay Toombs [and others].
- Bloomington, Ind. : Indiana University Press, �1995.
- 1 online resource (xiv, 221 pages).
- Medical ethics series .
- Medical ethics series. .
Includes bibliographical references and index.
Sufficient unto the day : a life with multiple sclerosis / The exceptional family : walking the edge of tragedy and transformation / Chronic illness and the dynamics of hoping / Rage and grief : another look at Dax's case / Whose story is it anyway? : authority, voice, and responsibility in narratives of chronic illness / Beyond respect to recognition and due regard / Chronic illness and freedom / Disability and the persistence of the "normal" / The social course of chronic illness : delegitimation, resistance, and transformation in North American and Chinese societies / The role of the rules : the impact of the bureaucratization of long-term care / S. Kay Toombs -- Ruthanne L. Curry -- David Barnard -- Lonnie D. Kliever -- Sue E. Estroff -- Ronald A. Carson -- George J. Agich -- John W. Douard -- Arthur Kleinman -- Muriel R. Gillick.